Bridging Borders, Transforming Lives.
The IMPSN is a global alliance dedicated to supporting those affected by MPS and related diseases.
Amplifying Voices and Advancing Care for the MPS and Related Disease Community
The IMPSN is a global network of patient advocacy groups dedicated to supporting those affected by MPS and related diseases. Together, we collaborate with healthcare providers, industry leaders, researchers, regulatory bodies, and advocates to champion enhanced care, promote earlier diagnosis, and expand research efforts for MPS and related conditions, ensuring that all communities have access to diagnosis, treatment and support.
The IMPSN "CARE" Method
Connections, Advocacy, Resources, Empowerment
We believe that through the CARE method we can create a world where those affected by MPS and related diseases thrive.
Connections
Building a united global network of MPS and related disease advocacy groups and allies.
C
Advocacy
Championing policies, regulatory frameworks and research to improve lives of those affected by MPS and related diseases.
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A
Resources
Providing essential information, support, resources and tools for the MPS and related disease community
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R
Empowerment
Equipping individuals and organizations to access resources and drive positive change for the global MPS and related disease community.
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E
C
Connections
Building a united global network of MPS and related disease advocacy groups and allies.
A
Advocacy
Championing policies, regulatory frameworks and research to improve lives of those affected by MPS and related diseases.
R
Resources
Providing essential information, support, resources and tools for the MPS and related disease community
E
Empowerment
Equipping individuals and organizations to access resources and drive positive change for the global MPS and related disease community.
Mucopolysaccharidoses (MPS) are a group of rare genetic disorders, and their overall global prevalence is estimated to be about 1 in 25,000 live births.
Be part of the IMPSN community.
Partner with us to create lasting change.
Join us in making a difference.
Support those affected by MPS by taking action today.
