Great news for MPS 7 (Slay Syndrome) patients in Brazil, yesterday was published the reimbursement approval of the ERT with
Documents Download Download IMPS AGM Download Minutes July 5 here Life for MPS and Scientific Award Download Draft bylaws
Like many other areas of the world the UK is experience a second wave of Covid 19. There are different
Created in April 1992 by Christine Lavery, president of the MPS Society of the United Kingdom then, with the support and engagement of other MPS organizations around the world, as the MPS Society of Australia, Austria, Germany, Italy, Norway, Poland, Russia , and other organizations that have decided to unite to learn and share their experiences in each country and work to promote better care for families and people with MPS and other related illnesses. As well as working with the medical community to develop treatments so that people affected by MPS and related disorders could have a better quality of life.
CEO, MPS Society & MPS Commercial, UK
President/CEO, National MPS Society, USA
Secretariat
Founder of the Botswana Organization for Rare Diseases (BORDIS)
The IMPSN mission is to be the primary platform for the MPS and Related Diseases. IMPSN is a global community of informed and empowered organizations, who promote access to medicines, new research, and programs that lead to better quality of lives for patients and those affected by these diseases.
To facilitate the continual development of informed MPS and Related Diseases Communities. To serve as a resource for stakeholders around issues and challenges from a Political, Social, and Health standpoint. To influence policy, take action, and advocate on a global level t help deliver fair and equitable access to treatments and care for those affected by MPS and Related Diseases.
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