Awareness
Connecting global experts to support those affected by MPS and related diseases.
What the IMPSN Does
The IMPSN serves as a vital link between the global MPS community and the resources, expertise, and advocacy essential for enhancing patient outcomes.
Global
Advocacy:
Raising international awareness about MPS, advocating for earlier diagnosis, better treatment access, and the inclusion of MPS in newborn screening programs worldwide.
Resource and Support Coordination:
Providing a centralized platform for resources, connecting patients, families, advocates, and healthcare providers to critical information, support services, and emerging research.
International Collaboration:
We foster collaboration among global stakeholders—including researchers, clinicians, patient organizations, pharmaceutical companies, and decision-makers—to drive progress in MPS and related diseases care and treatment.
Capacity Building in Underdeveloped Regions:
The IMPSN focuses on reducing disparities by assisting resource-limited countries and regions with tools to improve diagnosis, treatment, and patient support.
Research and
Innovation Promotion:
By supporting research initiatives and technological advancements, the IMPSN contributes to the development of cutting-edge treatments and improvements in patient care.
Why It's Unique
Global Reach
and Unity
Focus
on Equity
Comprehensive,
Cross-Disciplinary Approach
Future-
Focused
Why Someone Would Need the IMPSN
Access to Global Expertise
Families, patients, and healthcare providers can connect with experts and cutting-edge research that may not be available locally.
Comprehensive Support
Individuals and families affected by MPS need guidance in navigating complex treatment options, clinical trials, and patient support services. The IMPSN offers a consolidated resource for these needs.
Collaborative Opportunities
Organizations, researchers, and clinicians benefit from the IMPSN’s collaborative platform to share data, participate in global conferences, and collectively work toward more effective treatments.
Reducing Healthcare Gaps
In regions with limited healthcare infrastructure, the IMPSN provides essential support, offering tools and resources that make diagnosis and treatment more accessible.
