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Great news for MPS 7 (Slay Syndrome) patients in Brazil, yesterday was published the reimbursement approval of the ERT with

Documents Download Download IMPS AGM Download Minutes July 5 here Life for MPS and Scientific Award Download Draft bylaws

Like many other areas of the world the UK is experience a second wave of Covid 19. There are different

Covid-19 was first confirmed in Australia in January 2020. The outbreak has been managed as a health emergency. Over the

Charitable Access Programs – A Lifeline !! Many MPS and related diseases patients and their families, my family included, benefit

How did you become involved with this organization? I am a mother of four children, our first two children have

Dear IMPSN Members: For many years, this time of the year meant that we were about to meet in person