The MPS community advocates for increased awareness, research funding, and access to treatments globally to improve outcomes for patients worldwide.

The MPS community advocates for increased awareness, research funding, and access to treatments globally to improve outcomes for patients worldwide.

What is MPS?

Mucopolysaccharidoses (MPS) are a group of rare genetic disorders caused by the deficiency of enzymes needed to break down complex sugars called glycosaminoglycans (GAGs).

  • MPS is caused by the deficiency of enzymes needed to break down complex sugars, leading to their accumulation in various tissues.
  • MPS can result in a range of symptoms, including developmental delays, skeletal abnormalities, and organ dysfunction.
  • MPS is inherited in an autosomal recessive pattern, meaning that both parents must carry a faulty gene for a child to inherit the disorder.
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It's About Time:

To Shine a Light
for MPS

A powerful message advocating for education, awareness, and hope for those affected by Mucopolysaccharidoses (MPS) and related diseases.

By shining a light on these rare disorders, we can illuminate the path towards early diagnosis, effective treatments, and ultimately, cures. Together, we can provide hope and support to individuals and families impacted by MPS, ensuring a brighter future for all.

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MPS is a rare disease, and unfortunately, not many people are aware of its existence, which can lead to delayed diagnosis and treatment for those affected.
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Early diagnosis and intervention are crucial for MPS patients to improve quality of life and prevent disease progression.
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The average time to diagnosis for MPS can range from 3 to 10 years, leading to delayed treatment and management.

It's About Time:

To Fight
for MPS

A call to fight for the rights of all MPS patients, regardless of their location or financial status, to have equitable access to early diagnosis, treatment, and support, providing them with the care and resources they need to thrive.

Our voices need to be loud, and our actions meaningful, as we advocate for change and support for those affected by MPS.

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MPS affects people of all ethnicities and demographics, but prevalence rates may vary among different populations.
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Patients with MPS often face challenges accessing timely diagnosis, treatment, and supportive care, particularly in underdeveloped countries with limited healthcare resources.
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Every person affected by MPS should have equitable access to diagnosis, treatment, and support to live their best lives.

It's About Time:

To Unite
for MPS

A rallying call for researchers, healthcare providers, policymakers, pharmaceutical companies, and the community at large to come together in the fight against Mucopolysaccharidoses (MPS) and related diseases.

By uniting our efforts, we can enhance our understanding, identify effective treatments, and ultimately improve the lives of patients and their families. Together, we can provide the support and compassion needed to uplift those affected by MPS, fostering a united front for progress and change.

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While there is currently no cure for MPS, ongoing research is focused on developing new treatments and improving outcomes for affected individuals.
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MPS patients and their families require extensive support to thrive, including access to a range of community resources and therapies tailored to their specific needs.
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MPS is a lifelong condition that requires multidisciplinary care involving specialists in genetics, pediatrics, and other fields.
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The "It’s About Time" campaign is developed through collaboration with the International MPS Network and the following industry partners:

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