Patient support and advocacy
If you or someone you know needs assistance or would like to learn more about how the IMPSN can help, click the link below or email us at info@impsn.ca to connect. Together, we can overcome barriers and create better outcomes for those affected by MPS and related disorders.
The International MPS Network (IMPSN) is dedicated to making a meaningful difference in the lives of patients and families affected by MPS and related lysosomal storage disorders worldwide. Through collaboration and advocacy, the IMPSN works to address the unique challenges faced by international patients, including access to accurate diagnoses, life-changing treatments, and essential resources.
Promote Access to Equitable Care and Treatment
The IMPSN works tirelessly to address global disparities in MPS care by collaborating with patients, caregivers, healthcare providers, advocacy groups, and industry partners. We advocate for life-saving therapies in underserved regions, influences policy, establishes care standards, and works to eliminate barriers to equitable healthcare.
Advocate for Early Detection and Newborn Screening Programs
Early detection is crucial for improving outcomes in MPS. The IMPSN advocates for the global expansion of newborn screening (NBS) programs through collaboration with governments, healthcare organizations, and industry partners. Additionally, it offers training, resources, and information to support effective implementation and assist with early detection efforts beyond newborn screening.
Raise Global Awareness
The IMPSN raises awareness of MPS challenges through initiatives like International MPS Awareness Day and the International MPS Symposium. It develops culturally relevant resources, coordinates global activities, and collaborates with patient organizations to amplify voices. By leveraging digital platforms, the network drives understanding and advocacy worldwide.
Empower the MPS Community
The IMPSN strengthens the global MPS community by fostering collaboration and sharing knowledge. Through meetings, workshops, and events, it offers training, toolkits, and resources aimed at driving systemic change and enhancing care.
Offer Educational Resources
The IMPSN creates culturally tailored educational materials on diagnosis, treatment, symptom management, and emotional support. Collaborating with experts, it ensures resources are accurate, accessible, and empower families to make informed care decisions.
Build and Grow a Global Support Network
The IMPSN connects advocacy groups, families, and professionals globally to build solidarity in the MPS community. It fosters dialogue, develops regional support, mentors emerging groups, and reaches underserved regions.
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Partner with us to create lasting change.
Join us in making a difference.
Support those affected by MPS by taking action today.
