MPS Transition to Adulthood Toolkit
Supporting young people with MPS as they move toward greater independence in health, education, and life.
This toolkit brings together practical guides, planning tools, and trusted information to help individuals and families prepare for adulthood with confidence.
Who Is This For?
Young people with MPS
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Families and caregivers
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Healthcare providers
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Educators and support professionals
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Module Overview
Not Sure Where to Begin?
Start with the module that reflects your current stage of transition — or begin with Medical Management if you’re preparing for increased healthcare independence.
Quick Access Downloads
All checklists and templates are available within their respective modules — and can also be accessed directly below.
Module 1:
Personal & Medical Management
Personal & Medical Management
- My Health Passport
- Symptom & Treatment Tracker
- Emergency Preparedness Guide
- Pain & Fatigue Management Plan
- Patient Rights & Self-Advocacy Guide
Module 2:
Education & Employment
Education & Employment
- Navigating Higher Education Guide
- Career Planning & Workplace Adaptations
- Scholarships & Financial Aid Resources
- Success Stories from MPS Adults
Module 3:
Independent Living
Independent Living
- Daily Living & Assistive Technology Guide
- Transportation Checklist
- Financial Management Guide
- Housing Accessibility Checklist
- Healthcare & Self-Care Planning
- Family & Caregiver Task Chart
How to Use This Toolkit
The toolkit is designed to be flexible. Move through it at your own pace.
1. Start with the Overview
Get a clear picture of what the toolkit includes and how it’s organized.
2. Download the Tools You Need
Choose the guides and templates most relevant to your current stage.
3. Work Through Them at Your Pace
There’s no fixed order — move forward in a way that feels manageable.
4. Share with Your Support Team
Bring your completed tools to appointments, school meetings, or planning discussions.
