Volunteer with the International MPS Network.
Volunteers are the heart of the International MPS Network (IMPSN). Your time, skills, and passion can make a meaningful impact on the lives of those living with MPS and related lysosomal storage diseases (LSDs). Whether you’re a student, professional, caregiver, or simply someone who wants to make a difference, there’s a place for you in our global community.
Why volunteer with the IMPSN?
Contribute to a Global Mission
Support efforts to improve the lives of individuals and families affected by MPS and related LSDs.
Build Your Network
Connect with international patient advocates, healthcare providers, researchers, and industry leaders.
Gain Valuable Experience
Develop skills and insights while working on impactful projects in rare disease advocacy and support.
Make a Difference
Help raise awareness, drive change, and provide resources to communities around the world.
Volunteer Opportunities
We offer a range of opportunities to suit your interests and expertise:
Advocacy and Awareness Campaigns
Help us design and execute campaigns, including the annual International MPS Awareness Day, to raise global awareness about MPS and related LSDs.
Event Support
Assist with planning, coordinating, and running events such as the IMPSN Annual Meeting, webinars, and the International MPS Symposium.
Resource Development
Contribute to creating educational materials, translating resources into other languages, or managing content for our resource repository.
Community Outreach
Support engagement with underrepresented or underserved regions to expand access to care and advocacy.
Research Support
Collaborate on projects such as patient support mapping, policy advocacy, or rare disease research initiatives.
Administrative Support
Provide assistance with communications, database management, or other behind-the-scenes activities that keep the IMPSN running smoothly.
How to get involved
Getting started is easy!
Fill Out the Volunteer Application
Share your interests, skills, and availability through our online form.
Attend an Orientation
Learn more about the IMPSN and how your role contributes to our mission.
Start Volunteering
Join one of our projects or events and make an impact right away!
Make a Difference Today
Volunteering with the IMPSN is more than just giving your time—it’s about being part of a global movement for change. Together, we can create a brighter future for those living with MPS and related lysosomal storage diseases.
