The International MPS Network

The International MPS Network (IMPSN) is a global alliance of patient organizations and experts working together to improve care, advance research, and advocate for those affected by Mucopolysaccharidoses (MPS).

Our Network

Hover over or click on a highlighted area below to learn more about each network member.

Network Directory

Argentina

Society:

MPS Argentina

Group:

IMPSN

Email Address:

doredim@hotmail.com

Email Address:

ampsarg@gmail.com

Links:

Austria

Group:

IMPSN, Europe, MPS Europe

Contact Name:

Michaela Weigl

Society:

MPS Austria

Email Address:

michaela.weigl@mps-austria.at

Links:

Belgium

Society:

BOKS Belgium

Group:

IMPSN, Europe, MPS Europe

Contact Name:

Lut De Baere

Email Address:

lut@boks.be

Email Address:

secretariaat@boks.be

Links:

Botswana

Society:

BORDIS - Rare Diseases Botswana

Group:

IMPSN

Contact Name:

Eda Selabatso

Email Address:

rareconnectbotswana@gmail.com

Email Address:

admin@bordis.org

Links:

Brazil

Society:

APMPS Brazil

Group:

IMPSN

Contact Name:

Regina Prospero

Email Address:

regina@apmps.org.br

Email Address:

reginagprospero@gmail.com

Links:

Bulgaria

Society:

MPS Bulgaria

Group:

Europe, IMPSN

Contact Name:

Dessislava Pavel

Email Address:

dessy_pavel@mail.bg

Canada

Contact Name:

Mary Bone

Society:

MPS Canada

Group:

IMPSN

Email Address:

mary.bone@mpssociety.ca

Email Address:

info@mpssociety.ca

Links:

China

Contact Name:

Yu Zheng

Group:

IMPSN

Email Address:

jjaini1999@gmail.com

Contact Name:

Jie Song (Vice Director)

Email Address:

584181348@qq.com

Croatia

Contact Name:

Sara Bajlo

Society:

Rare Diseases Croatia

Group:

Europe, IMPSN

Email Address:

rijetke.bolesti@gmail.com

Email Address:

sarabajlo@hotmail.com

Czech Republic

Society:

MPS Czech

Group:

Europe, IMPSN

Contact Name:

Jan Michalik

Email Address:

spmps@seznam.cz

Email Address:

JanMichalik@email.cz

Links:

Denmark

Contact Name:

Thomas Lange

Society:

MPS Denmark

Group:

Europe,IMPSN,MPS Europe

Email Address:

thomaslangedk@gmail.com

Egypt

Contact Name:

Mohammad Osman

Society:

MPS Egypt

Email Address:

ciencias82@hotmail.com

Links:

Estonia

Email Address:

andecorzetto@hotmail.com

Group:

Europe, IMPSN

France

Society:

VML

Group:

Europe, IMPSN

Contact Name:

David Jannetta

Email Address:

president@vml-asso.org

Email Address:

scientifique@vml-asso.org

Email Address:

villalongue.remi@gmail.com

Germany

Contact Name:

Carmen Kunkel

Society:

MPS Germany

Group:

Europe, IMPSN, MPS Europe

Email Address:

carmen.kunkel@mps-ev.de

Email Address:

georg.schetter@mps-ev.de

Greece

Contact Name:

Kate Theochari

Society:

Greek Lysosomal Assoc.

Group:

Europe, IMPSN

Email Address:

greeklysosomal.assoc@gmail.com

Email Address:

ktheochari1993@gmail.com

Hong Kong

Society:

Hong Kong MPS and Rare Genetic Diseases

Group:

IMPSN

Contact Name:

Terry Lai (Vice Chairperson)

Email Address:

terrylai17@gmail.com

Email Address:

hkmpsinfo@gmail.com

Email Address:

hongkongmpsgroup@gmail.com

Hungary

Contact Name:

Monika Demscik

Society:

MPS Hungary

Group:

Europe, IMPSN, MPS Europe

Email Address:

norbert.kato@gmail.com

Email Address:

almassy.zsuzsa@t-online.hu

Email Address:

mpstarsasag@gmail.com

India

Contact Name:

Manjit Singh

Society:

LSDSS India

Group:

IMPSN

Email Address:

manjitsingh@lsdssindia.org

Email Address:

contactus@lsdssindia.org

Ireland

Society:

MPS Ireland

Group:

Europe, IMPSN, MPS Europe

Contact Name:

Mary Boushel

Email Address:

boushel@eircom.net

Email Address:

irishmpssociety@gmail.com

Italy

Contact Name:

Flavio Bertoglio

Society:

MPS Italy

Group:

Europe, IMPSN, MPS Europe

Email Address:

presidente@aimps.it

Email Address:

presidente@mucopolisaccaridosi.it

Contact Name:

Sara Pensa

Email Address:

sara.pensa@hotmail.it

Iran

Contact Name:

Parastou Farrahi

Society:

Rare Diseases Foundation of Iran

Group:

IMPSN

Email Address:

radoir.international@gmail.com

Japan

Society:

MPS Japan

Group:

IMPSN

Email Address:

rxf02601@nifty.com

Email Address:

mps_office@mps-japan.org

Korea

Email Address:

hh9009@hanmail.net

Group:

IMPSN

Lithuania

Society:

MPS Lithuania

Group:

Europe, IMPSN

Contact Name:

Ramune Sliouzaite

Email Address:

ramune.sliuoza@gmail.com

Malaysia

Contact Name:

Ir Lee Yee Seng

Email Address:

presiden.mlda@gmail.com

Group:

IMPSN

Mexico

Contact Name:

Dr. Jesus Navarro

Email Address:

omer.proyectos@gmail.com

Group:

IMPSN

Netherlands

Contact Name:

Hanka Dekker

Email Address:

h.dekker@stofwisselingsziekten.nl

Society:

VKS

Group:

Europe, IMPSN, MPS Europe

New Zealand

Society:

Lisosomal Diseases New Zealand

Group:

IMPSN

Norway

Email Address:

mpsnorge@gmail.com

Society:

MPS Norway

Group:

Europe, IMPSN

Pakistan

Contact Name:

Sadia Sajid

Email Address:

sadiasajid717@gmail.com

Society:

RISE Welfare Organization

Group:

IMPSN

Philipines

Email Address:

cynthia@psod.org.ph

Group:

IMPSN

Poland

Contact Name:

Teresa Matulka

Email Address:

mkaflik@wp.pl

Email Address:

tmatulka@wp.pl

Society:

MPS Poland

Group:

Europe, IMPSN

Russia

Contact Name:

Snezana Mitina

Email Address:

snmitina@mail.ru

Contact Name:

Denis Belyakov

Email Address:

denis.belyakov@spiporz.ru

Society:

MPS Russia

Group:

Europe, IMPSN

Serbia

Contact Name:

Dragana Miletic Lajko

Email Address:

dragana.mileticlajko@gmail.com

Email Address:

mps.serbia@gmail.com

Society:

MPS Serbia

Group:

Europe,IMPSN,MPS Europe

Spain

Contact Name:

Jordi Cruz

Email Address:

Jordi.cruz@mpslisosomales.org

Contact Name:

Ana Mendoza

Email Address:

amendoza.mps@gmail.com

Society:

MPS Spain

Group:

Europe, IMPSN, MPS Europe

Sweden

Contact Name:

Oskar Ahlberg

Email Address:

mps@oskarahlberg.com

Email Address:

veronica_rasmus@hotmail.com

Society:

MPS Sweden

Group:

Europe, IMPSN, MPS Europe

Switzerland

Contact Name:

Verein Mukopolysaccharidosen

Email Address:

office@verein-mps.ch

Email Address:

wiesbauer@swissonline.ch

Society:

MPS Swiss

Group:

Verein MPS

Taiwan

Contact Name:

Virginia Tsai

Email Address:

tsaivirginia@yahoo.com.tw

Email Address:

kelin_lai@yahoo.com.tw

Society:

MPS Taiwan

Group:

IMPSN

Turkey

Contact Name:

Muteber Erdoglu

Email Address:

mpsturk@gmail.com

Email Address:

mutebereroglu@gmail.com

Contact Name:

Selcuk Kayan

Email Address:

kayanselcuk@hotmail.com

Society:

MPS Turkey

Group:

Europe, IMPSN

Ukraine

Society:

MPS Ukraine

Group:

IMPSN

Contact Name:

Tetiana Kulesha

Email Address:

rareorgua@gmail.com

United Kingdom

Contact Name:

Bob Stevens

Email Address:

B.stevens@mpssociety.org.uk

Email Address:

t.ellerton@mpssociety.org.uk

Society:

MPS UK

Group:

Europe, IMPSN, MPS Europe

USA

Contact Name:

Terri Klein

Email Address:

terri@mpssociety.org

Email Address:

steve.holland@mpssociety.org

Society:

National MPS Society

Group:

IMPSN

All MPS Diseases

Related LSD's

The International MPS Network

Our Network

Hover over or click on a highlighted area below to learn more about each network member.

Network Directory

Society:

MPS Argentina

Group:

IMPSN

Email Address:

doredim@hotmail.com

Email Address:

ampsarg@gmail.com

Links:

Group:

IMPSN, Europe, MPS Europe

Contact Name:

Michaela Weigl

Society:

MPS Austria

Email Address:

michaela.weigl@mps-austria.at

Links:

Society:

BOKS Belgium

Group:

IMPSN, Europe, MPS Europe

Contact Name:

Lut De Baere

Email Address:

lut@boks.be

Email Address:

secretariaat@boks.be

Links:

Society:

BORDIS - Rare Diseases Botswana

Group:

IMPSN

Contact Name:

Eda Selabatso

Email Address:

rareconnectbotswana@gmail.com

Email Address:

admin@bordis.org

Links:

Society:

APMPS Brazil

Group:

IMPSN

Contact Name:

Regina Prospero

Email Address:

regina@apmps.org.br

Email Address:

reginagprospero@gmail.com

Links:

Society:

MPS Bulgaria

Group:

Europe, IMPSN

Contact Name:

Dessislava Pavel

Email Address:

dessy_pavel@mail.bg

Contact Name:

Mary Bone

Society:

MPS Canada

Group:

IMPSN

Email Address:

mary.bone@mpssociety.ca

Email Address:

info@mpssociety.ca

Links:

Contact Name:

Yu Zheng

Group:

IMPSN